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Chronic Fatigue Syndrome
Join the discussion on the Chronic Fatigue Syndrome forum. a place to chat about what interests you!
This syndrome refers to continued tiredness not relieved by rest or caused directly by a medical condition. The causes are unknown, but some theories say that it may be due to Epstein-Barr virus and inflammation in the nervous system, genetics, stress or previous illness. Some of the symptoms are confusion, extreme tiredness, forgetfulness, irritability, not feeling refreshed after a proper sleep. 

Any helpful information for those who have this syndrome?
Brendajean Smith Berger
wow,never heard of this before but describes me to a T since I had my cancer. I get so confused at times I cant even think of the names of common every day items,and I can sleep 12 hours and still feel like I haven't slept in years. I forget wear I put things and what I was doing after just a few minutes and I have been so moody I am constantly snapping at my poor husband over petty things. how do you correct this problem?
Lovee Smith
Dear Kim, find a pain management doctor. They're more equipped to diagnose Fibromyalgia.
Lovee Smith
I was diagnosed with Fibromyalgia and although it isn't life threatening; it's definitely life challenging. The pain for me is excruiating
Kim Lyman
How do you get this diagnosis, because it describes me to a T! Although, doctors always blame it on something else, like having little kids etc. Maybe I should get a second opinion, but I guess what would be the point unless there is some way to treat it.
Renee R
It's so discouraging when doctor blame it on kids. I had a problem with extreme fatigue a few years back, and my doctor kept saying it was because of the kids. But, I tried to explain that this is beyond normal tired - I couldn't tell if I was awake or asleep half the time. It was awful.
Kitty S
I think I have this too. I'm always tired! I even take my multivitamins, try to exercise and eat right, still tired.
Candina Szabo
i swear i have this no matter how much i sleep im always tired and wanting to go back to sleep
DarienandVal Mcpherson
I use to think that I had CFS, but now it seems more as if it's Fibromyalgia
Amy C
I'm usually tired quite often too. I'm not sure why but part of the reason may be that I do not sleep well, however because of that I try to sleep an hour or two extra.
Wanda Peebles
does menopause play any part in this?
Candina Szabo
im tired all the time i wonder if i have this
Katie K
Can someone explain how this comes on? I am really curious if this develops later or what factors lead to it.
Paul Winter
The biggest problem with Chronic Fatigue Syndrome is it's name. It really trivializes the illness. If only it was just about being tired all of the time. It was originally known as myalgic encephalomyelitis here in the UK and is a recognised neurological disorder. But then the CDC investigated a outbreak in the US and came up with this awful name.

I've had it for over eight years now and have been unable to work. Alongside the fatigue I have a spastic gait, involuntary movements, cognitive problems, speech difficulties and a number of other symptoms. Fatigue is only one of them. All of my symptoms worsen with very little activity.
Renee R
I agree that the name trivializes the illness. It's not just being tired all the time. It's overwhelming exhaustion that prevents you from participating fully in life. It's very difficult.
Carrie Stark
I think the name does trivialize it. People hear it and think "Oh, I'm tired, too, and I still do this or should be able to do it". When in reality it's so much more.
Katie K
That sounds hideous to have. Did it develop later in your life or suddenly or has it always been that way? I had Mono and had all of these symptoms for almost 1 year. It was horrible the year, I had foggy mind, I could sleep for 18 hours and still not be slept enough. I am so happy that it seemed to run its course. Still can sleep a lot, but much better.
Carrie Stark
For me, I can look back and see glimpses of it throughout my life, but the main symptoms intensified after the birth of my daughter. It's been about 4 years of living with all the symptoms.
Paul Winter
I developed it when I was 46 years old, I'm now 54 and have not improved. In fact I've gradually got worse. The doctor now suspects I may have Parkinson's Disease and not CFS.
Ramona Smith Follett
Chronic Fatigue has been a problem for me for years. I came across products that have really helped me manage this disease. I now own my own business because I beleave in the products. If you are interested let me know. They are natural and in powder form that you mix with water and drink. The dailey essential kit we sell is a great deal. My e-mail is or you can call me at 716-373-1255. I finally have my life back and you can to.
Margaret Stanley
Do you live in the Buffalo, NY area (I can tell by your area code)? I lived in upstate NY for over 30 years and I can say I will never miss those brutally long, cold winters!
Ramona Smith Follett
No I live in Olean NY ! Our winters have been mild for several years now. Makes me wonder each year if we are in store for a blizzerd. LOL
Margaret Stanley
How far is Olean from Buffalo? And really you've had mild winters for several years in a row? That's incredible, living in upstate NY. Sounds like you are definitely due for a blizzard soon!
Ramona Smith Follett
Buffalo is about 2hrs. from here. And I really hope we don't get any blizzards. LOL
Margaret Stanley
Wow, you might live closer to Rochester, NY (where I grew up) then.I really hope you don't get any blizzards too! But those upstate NY winters were just killers for me-the bitter cold and the snow and ice. Ugghhhh, never again!
Ramona Smith Follett
We were in Rochester a week ago for our nieces wedding. We stayed in Lima NY and thats only 20 min. from Rochester. Where do you live ?
Margaret Stanley
I grew up in Brighton, a suburb of Rochester, but I moved to France two yeas ago.
Ramona Smith Follett
OMG I would love to see France. My hubby was there a few years ago cause of his work at the time.
Margaret Stanley
Well a roundtrip ticket from Rochester to France is not that expensive if you don't go in the high season (tourist season). It's a beautiful place to visit and you can find nice two star hotels in Paris for around $70 a night (if you take the time to search for one online). I'd recommend you and your husband start a little savings fund for your trip to France and before you know it you'll have enough saved up to make that trip a reality.
Sharon Levinson
Hey, Margaret, im from Rochester-grew up near the Eastman House. Now living in brighton :-) cool :-)
Katie K
Has this product been tested? Any clinical evidence to prove it works? What are the components and why does it work because of those factors?? What I see is a predatory product playing on the desperation of sick and hurting individuals, who are willing to try anything to get their lives back. If you'd really discovered something ground-breaking for this illness, why isn't this on the news or being research to be made into a drug? I don't know you, I don't know your product, but I do know there are many who use forums like this and desperate people, sick people, hurting people, are victims to predators who take their money, give them products that do nothing at best and do harm at worst, and prey upon the vulnerable with a scam.
Ramona Smith Follett
This is not a scam and my business is well known. Market America / Our products are in isotonix form ,meaning there is no pill to break down. You drink it and within 5 min. it's in your system. And we do not scam people. If your not pleased we refund your money. This product worked for me , and I am not saying it will work for everyone. But after spending thousands of dollers for percription medicine that wasn't working our products did. I took them to my doctors and they were pleased and said not to stop taking them. Go to and check it out for yourself.
Rosemarie Watkins
I'm glad this is finally recognized as a REAL disease.
Margaret Stanley
Yes for years it was not recognized as a disease and people had to suffer in silence because of it, I am glad the medical community finally realized that chronic fatigue syndrome is a real disease. It is often diagnosed when all other causes of fatigue are ruled out by medical tests and procedures and yet the person still suffers from fatigue.
Wanda Peebles
does it have anything to do with menopause?
Kristopher McEwen
Does this have anything to do with sleep apnea? Or vice versa?
Rachel Mauffray
Sleep apnea can rob you of sleep making you fatigued. However, it is not the same as actual chronic fatigue. Chronic fatigue has no known cause. Sleep apnea has to do with your breathing.
Sharon Braswell
My daughter has had this since 1993. Is there anything that has helped anyone here? Diet and light exercise has helped my daughter more than anything else.They were calling it C.F.I.D.S, chronic fatigue immune deficiency syndrome, as Chronic Fatigue Syndrome does not give the disease the respect it deserves. It is a very real disease, and very debilitating! Chronic fatigue is just one of many symptoms!
Brent Bell
I've always wondered if this is a real thing. Seems to me it's probably some kind of illness the doctors can't find so put it down to Chronic Fatigue. I mean I must have it then because sometimes I wake up not refreshed after a good sleep.
Margaret Stanley
Chronic fatigue syndrome is definitely a real thing. You don't have it because sometimes you wake up unrefreshed after a good night's sleep-that happens to everyone once in a while. It's when you are tired/fatigued ALL of the time, even though you get a good night's sleep.
Rachel Mauffray
I have chronic fatigue in a most severe way. I can sleep for ten hours and feel like I took an entire box of antihistamines when I get up. Of course, I can't sleep for more than an hour at a time anyway. It affects every aspect of my life. I am now battling a five month sore throat. I just had surgery and am still in the same pain that I started with. I am always the medical mystery.
Margaret Stanley
Sorry to hear abut your sore throat Rachel-the doctors can't figure out what's wrong? I'ma a little confused by your post, first you say you can sleep ten hours in a row then you say you can't sleep more than one hour in a row. Which is it?
Rachel Mauffray
Sorry, I meant that I can attempt to sleep for many hours. The fatigue is the same if not worse even if I got lucky and slept for a few hours. That's why I avoid daytime naps. They make me feel worse. That is just one minute aspect of what this debilitating disease does to me. It affects every aspect of my life in great measure. Thank you for asking about my throat. I have to start over with a third ENT to help me figure out what's wrong with it.. As it is, last week's surgery gave me a bacterial infection of the sinuses and respiratory system. My immune system is weak from Chronic Fatigue/Fibromyalgia. I am damned if I do and damned if I don't.
Margaret Stanley
I am sorry to hear about your difficulties Rachel. I know Chronic Fatigue Syndrome is a serious illness that has repercussions in all major areas of your life. I admire you for persevering and continuing to battle this disease. Keep up the positive spirit and you will make it through this.
Kitty Moss
Rachel, I too have Fibromyalgia and CFS which both go hand in hand. I know for a fact that both these diseases are very debilitating and serious. I do sometimes get to sleep for 8 hrs. but still wake up not feeling refreshed. The meds. my doctor have me on help some but stress is a major factor that keeps all my symptoms flared up. Of course, the dr. says keep down stress, how I ask. I need those afternoon naps sometimes which again keep me from a good night sleep. I also catch everything around due to my immune system being weak. I no longer work but the one thing I do is try to keep on going which is the best medicine. Good luck with your disease and don't forget you're not alone in this illness.
Margaret Stanley
Kitty, I am sorry to hear that you have Fibromyalgia and CFS. The two combined must make it very difficult for you to carry out any regular activities without becoming overwhelmingly tired. Of course stress plays a role in how you feel, as it often does w\h many diseases. I wish you the best of luck and want you to know you are not alone in battling thee illnesses. You can find many others on chat rooms such as these and perhaps your doctor can refer you to some support groups, if you are interested.
Kitty Moss
Thank you Margaret. My doctor has given me several good locations to find help with the diseases. I constantly remind myself that there are more people in worse shape than myself to keep me going. I'm very thankful that I have understanding friends when I have flare-ups, because some of my family don't. But again thank you for you words of encouragement.
Melanie Neer
It's almost ironic that I have CFS now, since prior I was one of those people who could survive on just six hours keep, drank only one cup of coffee and from the moment I got up to the moment I went to bed I was always active.
Then five years ago, I was given an antibiotic, "Cipro" I've always been cautious about medications and preferred the penicillin types over other types, but my doctor insisted on the Cipro. About a month after taking it I noticed my joints swelling and pain…I didn't connect the dots until I was doing some research some months later and came across and read up on Cipro now had warnings (which it didn't have before) that it could trigger RA…yes, I have RA issues,but with it it also triggered CFS--my get up and go has definitely gone and went..went where I don't know, but it's frustrating as naturally I'm always tired and I just plain have too many things I need to accomplish everyday
Amanda Dollak
I was diagnosed with fibromyalgia about 3 years ago, but I've had it most of my life (just not nearly as severe). My fatigue has gotten so bad with my fibro in full swing that I suspect that I have CFS, too. Fibro is supposed to have some fatigue, but my fatigue is so severe that I never wake up feeling rested and never feel energetic. I've even forgotten how it feels to be rested and to have energy!
Ramona Smith Follett
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Ramona Smith Follett
Amanda , check out the above .
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